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  • Thanks Jane and Sheila for leading our discussion today! We had a great conversation about the challenges and successes related to enrolling in a clinical trial, based on your first-hand experiences. Thanks to all who were able to join and share your ...

  • Thank you, Kevin, I have contacted them to find out, but am not sure this would fit their criteria. The committees are part of NIH projects and is all volunteer at this time! I'm still looking for a few more people, so appreciate it if everyone can spread ...

  • Dear All, Just a reminder that poster abstracts for the virtual Global Clinical Trial Disclosure & Data Transparency Conference on November 16 th – 18 th are due October 15 th ( https://www.diaglobal.org/abstract/meeting-details?productID=9289747&productcode=20119CFP ...

  • Dear Mary, I would love to participate in this initiative! I'm a medical translator specialized in clinical trials. I'm also an IBD patient, so I get to enjoy both perspectives. I'll send you an email asap today. Thank you! Best regards, Ana ...

  • Will do my best!  I have a doctor's appointment and not sure I'll be back by then but will try. Best, ------------------------------ Gloria Stone Owner G. Stone Connections, L.L.C. Pompton Plains NJ +1(201)415-4987 ------------------------------

  • HI PEC members,  Hope you are all safe and enjoying the last weeks of summer. Due to some other conflicting virtual conferences this week, we won't be having our regular meeting on Thursday.  Our next meeting will be on Thursday, September 17 at 11 ...

  • Dear PEC,  Thanks to all who attended our DIA PEC meeting on Thursday, July 16. We had a good discussion with feedback about the first virtual DIA Annual Meeting, and we also started to brainstorm topics and priorities for our community to cover in ...

  • Thanks to all who attended the PEC meeting. The slides and recording are now available through the links below. Looking forward to "seeing" everyone at the Annual Meeting!   Recording: https://diaglobal.zoom.us/rec/share/uspYIIDp61hOXJ3D50fTS4EFHKnhaaa81iYa_qANnU0JStAPOk88Do347B4ZIV1S?startTime=1591888215000 ...

  • Many thanks to Gwen Mayes and Kevin Freiert for leading our discussion of Experts by Experience, how to elicit and integrate patient narratives into drug development. Links to the session's slides and recording are below. Slides: https://communities.diaglobal.org/viewdocument/may-14-2020-experts-by-experience?CommunityKey=7a9ec23b-28ef-4a09-b5a6-73949adc0500&tab=librarydocuments ...

  • http://dx.doi.org/10.1111/hex.13064 This new publication in Health Expectations provides practical background, methodologies and metrics as meaningful patient engagement in research evolves. While it is focused on people with Parkinson's Disease, ...

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