REMINDER! Mark your calendars and register today!
Dear Bioethics Community Members,
Lindsay and I are excited to host a meeting on October 23 from 12:30 - 1:30 pm Eastern to discuss patient engagement amidst AI in clinical research. We will be speaking with two experts in the field of patient engagement as we explore the implications of AI for clinical research. See the full description below. Check out the information on our event page and register at this link to get the zoom information: https://diaglobal.zoom.us/meeting/register/tJ0ldO-ppjgqHtP_TqX4OCfbXZgt5Uux_4IJ
Can a Chatbot give true informed consent? The ethical imperative to maintain patient engagement amidst AI in clinical research
Generative AI is being used for everything from homework assignments to reference letters to song lyrics. A natural question is how to leverage this technology in the research and development of new drugs and therapies, including in clinical trials. It is tempting – and in some cases appropriate - to use this new technology to gain efficiencies and to possibly remove the risk of human error or subjectivity. It is equally important to consider where human interaction remains essential, and the extent to which the technology is validated. As we test AI use in clinical trials, we need to remember the importance of ensuring that patient voices are included in addition to reliance on tools, that appropriate human oversight is maintained, and that the datasets used to validate and develop these tools accurately reflect all patient populations we want engaged in research.
Please join this panel discussion, in which experts from the fields of bioethics, patient advocacy, health literacy, and drug development talk about the importance infusing patient engagement into the benefits and risks of leveraging AI in the research enterprise. This conversation is hosted by the DIA Bioethics Community.
Our panelists:
Catina O’Leary, PhD, LMSW (she/her/hers)
Health Literacy Media
Catina O’Leary, PhD, LMSW, is President and CEO at Health Literacy Media, a St. Louis based nonprofit that develops and distributes health literate and accessible health and science communications. Before joining HLM in 2012, as faculty at Washington University School of Medicine, Catina led large-scale, community engaged HIV prevention and substance related research trials in the U.S. and around the world. Catina is currently a member of the National Academies of Sciences, Engineering, and Medicine’s Roundtable on Health Literacy and the International Health Literacy Association’s Board of Directors, where she serves as Chair of the iHLA Council of Affiliates.
Deborah Collyar
Patient Advocates In Research (PAIR)
Deborah Collyar has been a patient engagement leader since her first cancer diagnosis. She founded Patient Advocates in Research (PAIR) international communication network in 1996, "where research meets reality." Deborah infuses hundreds of patient advocates into research programs, and delivers innovative ways to gather input from thousands of patients. Her work encompasses many diseases, programs and policies at grassroots, national and international levels and emphasizes patient issues throughout development, clinical trials, and health literate communication with providers and patients. She is a speaker, blogger, author, team member, trainer, and faculty at professional workshops.