Patient Engagement Community

Hi all, A blog "Four reasons you should consider becoming a lay member of the Confidentiality Advisory Group (CAG)" published by Dan Roulstone, lay ...

Hi all, HRA rolled out a draft model Investigator Initiated Study Agreement on which commenting is open until June 03, 2024 via email. Please see below ...

Hello! If you missed yesterday's meeting (or want to relive the experience!), you can find the recording in the library . Trish Davidson from Tufts and ...

Hi all, Following the webinar earlier this month, the Clinical Research Glossary by MRCT is now available at the following location: https://mrctcenter.org/glossary/ ...

Come join us next Thursday, April 11 at 11 am Eastern for the next PEC-All meeting! Patricia Davidson from the Tufts Center for the Study of Drug Development ...

Hello everyone! We had a wonderful meeting last week. Many thanks to our friends at the Tigerlily Foundation for sharing information about their RAISE ...

Hello all, Today at 12 noon EST the DIA Regulatory Policy and Intelligence meeting with FDA's Theresa Mullin discuss "Greater Regulatory ...

I was sent this by a colleague Compensation and Recognition for Patient Partners in Health Research Survey (I've been told you can fill it out even ...

TransCelerate is hosting a webinar panel on general considerations to enable data return to clinical study participants. The opportunity is free for ...

Come join us next Thursday, March 14 at 11 am Eastern for the next PEC-All meeting! Maimah Karmo and Jeanne Regnante of the Tigerlily Foundation will ...

This is great that you shared! Several members of the DIA PEC have been involved with this effort since the beginning and in an ongoing fashion so it ...

Hi all, Please see below link to the document published in Regulatory Focus: https://www.raps.org/News-and-Articles/News-Articles/2024/3/FDA-recommends-participants-receive-key-trial-info ...

Hi all, MRCT Center in collaboration with CDISC is launching newly expanded and re-designed Clinical Research Glossary. A webinar is being organized ...

Hi all, The Patient Information Forum (PIF) has published the Health Literacy Checklist. This checklist is built to check how health-literacy friendly ...

There's an interesting piece in PwC newsletter: From Principles to Practice: Responsible AI in action For those who want to know more about AI, this ...